May 13, 2017…I’ve never liked roller coasters. That feeling you get in the pit of your stomach when you plummet like a rocket to the ground strapped to a small metal seat.
Battling lyme is like a roller coaster. You have your good days and then you have your moments where you feel like you are in a full speed plummet to the ground and are fighting against your own body to regain control.
Lyme is a tricky illness to treat. It hides everywhere. And just when you think you have found it, it finds a new place to hide. There is no cure, but there is help…you just have to look. As a patient, you have to search high and low and across state lines in many cases to find someone to listen and who is willing to help. Lyme patients learn the hard way how to navigate a medical world that does not recognize chronic lyme. My past week was filled with more doctors appointments, bloodwork and a step up in my treatment protocol. Every persons battle with lyme is different. Many patients go through a lot of different treatment protocols to help rid their bodies of the bacteria. Treatment is extensive AND expensive. As the treatments begin to take hold, it will make your symptoms worse as you kill off the bacteria. I began my new treatment protocol today. It is overwhelming, but I’ve got my post it notes, spreadsheets and checklists all lined up and ready to go. Weeks 1 and 4 of my treatment plan are supposed to be the hardest. I still have the same diet restrictions, although I need to step it up a notch. Doctors orders – NO snacks! Yes. I said it….three meals a day and no more snacks. So far I have survived the no snack rule since Friday. For a girl who is used to eating 6 small meals everyday, I will need to retrain my brain for my new normal.
I’m ready to continue this battle. I’ve had my moments of frustration and being overwhelmed, but now I’ve strapped on my seatbelt and I’m hanging on for the ride. Battling friends, time to lace up those boot straps and fight with me. God’s go US! #battleplan #fighter